MERRY CHRISTMAS
And welcome to our blog.
Considering this blog is for a wide variety of friends and family, it's appropriate that we explain what a blog is and how our family plans to use it. A blog is essentially a website where entries are written by the "blogger or blogette" (2nd term is self-created - not official) in a chronological order. Very similar to an on-line family journal with pictures. This journal could be updated daily or weekly. The word blog could also be used as a verb - as the action of adding stories to the blog.
Now that we have that cleared up....why did we create a blog? Our little Jimmo was diagnosed this past April with Fragile X Syndrome. Fragile What? It's the most common cause of inherited mental impairment. We will not know until school age of the severity but the range is wide, anything from a strong learning disability to moderate mental retardation. Because Jimmo is only 2 years old, we are currently within the years of the most brain plasticity and therefore we're deep in therapy - about 20 hours a week. Needless to say - our household is busy busy busy! We thought this would be a great way to keep you updated on his progress and our family as well. And this is also a place to learn more about Fragile X and how you can help us raise money for researching a cure for Fragile X.
So check back with us daily, weekly, monthly or annually - whatever suits you best, and hopefully you'll be entertained, fulfilled and excited to come back for more!
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9 comments:
Here's your very first official comment: I am so excited to be able to read this blog and keep up on Little Jimmy and the rest of your family. It's a lovely first post and I look forward to many more.
Thank you having enough courage to share updates regarding Jimmy and your family. Jimmy is very lucky to have you both as parents. On a side note, I wanted to let you know that I have been a special ed teacher in early intervention for a few years now. If you ever need to bounce ideas to someone, feel free to contact me. I am always here!!!! God Bless and Merry Christmas! Love, Michelle
Thanks for being willing to share your journey with us. We look forward to the updates. Blessings!
Just received your Christmas letter today...little Jimmy couldn't have been born into a more wonderful family. I am so moved by your efforts to raise awareness about Fragile X!
Hey Grandes!!! SO excited to know you're blogging. Just got your letter today and I'll be checking back often. Love you all! Happy New Year! Rachel
Can't wait to start reading your blog updates! Hope you all have a "Grande" New Years celebration! ;)
Dear Buffy, Jimi, Georgia & Jimmy, We Love you all and will be praying for little Jimmy, and all of you. What a loving letter & I really appreciate the blog! Would love to meet your family someday, you are SPECIAL!! Love in Christ Aunt Jill & Uncle Jim
Way overdue but have been meaning to comment about this amazing blog you and Jimi have put together. For me, living far from my nephew, I lose the daily interactions and progress that Jimmo shows in his OT and PT sessions. Buffy, when you told me this morning about Jimmo being about to walk 5 steps without the help of anyone holding his hand, finger, nothing...I was so happy! Just a couple weeks ago he was holding onto my hands as we raced around the island. So that is an amazing feat, on top of having faith in your son and going against the therapists wishes to provide him with a walker. I have no doubt that the reason for Jimmo's extreme progress in the last 11 months is the love, support, and attention he receives daily from you two. Buffy and Jimi, I can't explain how proud I am of both of you as parents. Although the journey is not over, remember how many people love and care for you and your family and we are here every step of the way.
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